PIK3R1
lorem ipsum doloret…
Category: Uncategorized
-
It’s been a peaceful weekend. I’ve had to field fewer phone calls since many medical offices are closed. I had to spend a few hours with family on Thanksgiving, but other than that I’ve mostly been able to rest. Symptom rundown: The start of my treatment has gone well. The visual symptoms that kicked into…
-
In good times, I’ve been able to go months without answering the phone. That’s no longer an option with active cancer. So many appointments to schedule, and they’re mostly by callback. The pharmacies call me. The insurance company nurses call me. Today I’ve answered five calls. Five too many! One of today’s calls asked me…
-
On Monday I had chemo class, and my Lenvima arrived in the mail. Can I start taking it yet? Nope. I have to wait until I get the Keytruda infusion scheduled, and insurance hasn’t approved that yet. They had better approve it soon. Is it normal to keep people with advanced cancer waiting? My understanding…
-
This morning I finally got the results of my CT scan at Big Cancer Center. But tell me, what’s scarier? The words in the report or the fact that I actually understand what all those words mean? (Ok, ok, I did have to look up “hydronephroureter”, but I’m sadly familiar with the rest.) I tried…
-
Publish Tuesday evening tl;dr – I got a CT scan at Big Cancer Center, and it was a lot more of a nuisance than prior scans. I can only hope it’s worth it. Background I set aside this full week for visiting Big Cancer Center to get a second opinion on treatment for my recurrence.…
-
Monday was a busy day, so in the afternoon I was just sitting in bed reading something on my laptop. Then all of a sudden everything went blurry. A moment later, my vision started to make sense, but there were two of everything–one on top of the other. Double vision. As soon as I was…
-
Wednesday I met with my oncologist. I thought we were going to discuss treatment options, but the extra testing on the liver biopsy sample was still in progress. This was just the appointment to let me know that my cancer is back. Surprise! I’d only known about it for 12 days already. I can’t imagine…
-
One of the stupidest parts in a cancer journey is that time during which you know that you have cancer but are not yet on any treatment plan. That’s where I am now. I’ve known for over a week now that my biopsy was positive. The same cancer I was diagnosed with in 2022 is…
-
I keep hearing other survivors say “Cancer doesn’t define me.” But, quite frankly, cancer is the most interesting thing to happen to me. To me the worst thing about cancer is the unpredictability. I’m not a fan of surprises. One of my strongest childhood memories was sitting in the living room staring at a spider…
